chronicallyinjured:

I’m tired of my family making jokes about my medical problems and pain. If they were going through this, they wouldn’t find it funny.

girl-in-a-wheelchair:

These arrived along with my communication cards.
[My collagen is faulty so my ligaments are too stretchy and my joints come out of place and injure very easily. My insides are stretchy too. sometimes I look find, sometimes I use crutches or braces or a wheelchair. Yes, it hurts and is exhausting. Yes, I fall over a lot and am clumsy. No there is no cure, it is my normal.For more information see www.hypermobility.org
Copyright © Hannah Ensor 2010 www.stickmancommunications.co.uk]
I am still waiting to see if I will be classified as having “benign” hypermobility or Ehlers Danlos Syndrome. My rheumatologist refused to do the usual tests on me for Ehlers Danlos, because doing the set of tests would hurt me and damage my joints more than the average person with Ehlers Danlos, because all of my major joints are too lax and already too damaged. When I attempted to argue and demonstrate it would be possible to do the tests I dislocated my shoulder. She looked at me, rolled her eyes, and told me she would send me to geneticists to find out what implications there are for the condition of my heart and other internal organs.
So I got this set of cards to give out to people to explain.

girl-in-a-wheelchair:

These arrived along with my communication cards.

[My collagen is faulty so my ligaments are too stretchy and my joints come out of place and injure very easily. My insides are stretchy too. sometimes I look find, sometimes I use crutches or braces or a wheelchair. Yes, it hurts and is exhausting. Yes, I fall over a lot and am clumsy. No there is no cure, it is my normal.
For more information see www.hypermobility.org

Copyright © Hannah Ensor 2010 www.stickmancommunications.co.uk]

I am still waiting to see if I will be classified as having “benign” hypermobility or Ehlers Danlos Syndrome. My rheumatologist refused to do the usual tests on me for Ehlers Danlos, because doing the set of tests would hurt me and damage my joints more than the average person with Ehlers Danlos, because all of my major joints are too lax and already too damaged. When I attempted to argue and demonstrate it would be possible to do the tests I dislocated my shoulder. She looked at me, rolled her eyes, and told me she would send me to geneticists to find out what implications there are for the condition of my heart and other internal organs.

So I got this set of cards to give out to people to explain.

Disability depression

marras6:

Feelings.

marras6:

Feelings.

youjustinspiredme:

Follow HIM he is looking for a tumblr girlfriend and boyfriendHe wants to be nice to them and make them famous  He is choosing out of only new followers

youjustinspiredme:

Follow HIM he is looking for a tumblr girlfriend and boyfriend
He wants to be nice to them and make them famous  
He is choosing out of only new followers

(Source: sluttiest-virgin)

(via asphyx-iate)

(Source: emmamalene, via zombiepussyliquor)

(via asphyx-iate)

(Source: arwena-320)

I never set out to be weird. It was always other people who called me weird.

Frank Zappa  (via farewell-kingdom)

(via zombiepussyliquor)